Matthew Yelton
Full Trisomy 18
Born Sleeping November 19, 2010
My husband and I were married in June of 08, we knew before we were
married that we wanted children right away. Our first son was concieved
right away and born 9 months after our wedding... Around his first
birthday we decided to try for our second child. It took less then a
month and we were pregnant again!! we couldn't have been happier... At
20 weeks we went to our routine ultrasound hoping to find out what we
were having, they told us the baby was being difficult and they couldn't
tell if it was a boy or girl but also couldn't get good pics of his
heart... They told us to come back in 3 weeks and they would try again.
So we did, it happened that the afternoon of the second ultrasound I
also had an appt with my ob. When we had that ultrasound they didn't
say much of anything except that they still couldn't find his boy
parts... After the ultrasound my husband went back to work, and I went
on to see the ob. That was the first day we were told there could be
something wrong... The ultrasound showed problems with his heart and
face. She sent us to see a perinate. In the next few days I had made
so many phone calls and yelled at plenty of office people for telling me
the soonest they could get us in would be 3 weeks. How CAN U TELL A
MOTHER THERE IS SOMETHING WRONG WITH HER BABY AND THEN TELL HER SHE HAS
TO WAIT 3 WEEKS TO SEE THE DR!!!!! Needless to say we got in the next
week. With the perinate and a peds cardiologist we had a lvl 2
ultrasound and an echocardiogram done. The ultrasound showed many
markers for Trisomy 18, I had never heard of it. The echo showed he
(also found out it was a boy!!) had many heart defects. It was then
that they told us they recommended the amnio.. The perinate was very
composed about it and didn't give his opinoin until my husband asked, is
it fatal? Thats when we were told that yes it is fatal and given all
the markers, he didn't look good at all. We got the FISH back in 48
hours that was positive for Trisomy 18. and the full results back 2
weeks later. We connected wtih the palative care director and head of
hospice. In the meantime we went back to my OB, please note that I was
20 weeks, the second at 23 weeks, the amnio and lvl 2 at 24 weeks and
finally back in the see my ob at 25 weeks. She told us we should
terminate, that he wouldn't make it and we were only adding inconvience
to ourselves by driving to an even further hospital to continue our care
and give him the best chance possible!!! I NEVER WENT BACK!! I was
told by my new ob that I had a condition called Polyhydromosis (SP) ,
which meant I was going to get very big, (I was already measuring ahead)
because I had alot of amniotic fluid. He was supportive and behind us
all the way. Matthew made his early arrival at 33 weeks, very much so
alive and kicking right up until the end. We lost Matthew durring
delivery. There are so many what if's and regrets. He never had the
chance to fight. I love you Matthew Leon. We will never forget,
everything I do, I do for that lil boy!! A peice of my heart died that
day, it broke right off and went to heaven with my precious son. I know
that one day I will have that back, the day we meet again.
We hope
these stories of children with trisomy will inspire you. From cleft
lips to contagious smiles, group of families are here to offer you
support as you begin
your trisomy journey. It seems we only hear of the problems that
come with a child having Trisomy .
There is so much more to these sweet lives. Each day the living children
bring
joy to their families as they accomplish simple tasks or reach a
milestone, the angels remind us that life is short but a blessing all
the same and they will forever be engraved in our hearts. Be sure to
check back for our next story or update and until then....Embrace life
one moment at a time ~ Vanessa
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