Evan Parker August McCauley

Evan Parker August McCauley

 5 lbs. 6 oz.  17 1/4 inches
March 5, 2012 6:11 pm to March 6, 2012 7:52 pm
Full Trisomy 13 with the following abnormalities:
cleft lip, cleft palate, mild bilateral clubbed feet, bilateral pylectasis, and the 

following heart defects: double outlet right ventricle, transposition of the great arteries, subpulmonary ventricular septal defect, pulmonary valve stenosis, left superior vena  cava, and dilated coronary sinus
 
 

 
At 24 weeks, we found out that our precious baby had Trisomy 13, and we had a choice to make. We chose to continue to carry our baby, our little boy, Evan. We knew it would be the hardest thing we had ever done. We did not know it would also be the most rewarding.
 

Our family had the chance to love our baby and get to know him and each other in ways we didn't know were possible. We now know a deeper love than we had ever known...for Evan, for each other, and for God.

We will cherish the memory of every movement, every kick, and every hiccup we ever felt him make. We will smile every time we remember the knock-knock jokes his brother, Owen, told him; the games of chase his sister, Nadia, would play with him; and all the songs we sang to him (especially "I Love You Like a Love Song, Baby.") I will never forget how the kids would picture baby Evan "standing up in there and dancing" as they sang to him in my tummy. Who knew you have so much fun with a baby still in his mother's womb?


We were prepared to never meet our Evan outside the womb. We thank everyone for their prayers; they were heard and answered. The Lord gave us a little fighter, and He and Evan gave us the most incredible 25 hours and 41 minutes anyone could ever ask for.  Our baby boy was absolutely perfect, and I was even granted the opportunity to do "mommy things" with him.  I was able to wash his hair, change his clothes, feed him, change 3 diapers, and, best of all, both myself and my husband were able to sleep with our baby in our arms.   Many, many people came to meet and hold him, and everyone looked at him with love and awe; he was beautiful.  Evan taught so many people so much in that short amount of time.  The day we spent with Evan was the greatest day of our lives, and it will only be topped when we are all together again.

Evan, we love you more than we knew possible. You are now experiencing an even greater love from your Father in Heaven, and that knowledge will get us through this. We love you, Evan, and we are so very proud of you!

We hope these stories of children with trisomy will inspire you. From cleft lips to contagious smiles, group of families are here to offer you support as you begin your trisomy journey. It seems we only hear of the problems that come with a child having Trisomy . There is so much more to these sweet lives. Each day the living children bring joy to their families as they accomplish simple tasks or reach a milestone, the angels remind us that life is short but a blessing all the same and they will forever be engraved in our hearts. Be sure to check back for our next story or update and until then....Embrace life one moment at a time ~  Vanessa

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